My SVC is completely occluded (by a thrombus). Both of my jugulars and several other veins are also occluded. I've gone through 2 surgeries in an attempt to reopen my svc and place a stent, neither of which have succeeded (could not penetrate the thrombus). My collaterals are currently handling the venous load, but it comes with some pretty significant symptoms. I need suggestions as to where to look next to find a way to get this fixed.
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SVC occlusion
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I am very sorry to hear about your problems. I see that Dr. Shiloh recommended an interventional radiologist. That may be an option. But this is a tough problem, I must say. I recently had a patient with deep venous occlusion of the lower extremities and called many academic centers (including Stanford and UCSF) to see who could help the patient. I even called my colleagues at the American College of Surgeons. Try your nearest university center Dept. of Surgery and see if they can direct you to the right surgeon. All the best.